At EUFOREA, we know that living with an airway disease goes far beyond managing symptoms. It’s navigating daily challenges that only someone with firsthand experience can truly understand.
That’s why the EUFOREA Patient Advisory Board brings together patients, caregivers, and patient advocates from across the globe. Together, we work to create a future of respiratory care that truly reflects patients’ needs and priorities.
From shaping research and education to improving the patient journey. It is more than just a network of people who truly understand the patient journey. It is turning shared experiences into real, practical, and meaningful impact that benefits both the respiratory patient and healthcare communities.
One of the key results of this partnership is the EUFOREA Patient Portal on this website. Developed in close collaboration with our Patient Advisory Board and designed to better support and empower people living with airway diseases.
The EUFOREA Patient Advisory Board is a group of respiratory patients and carers who share firsthand knowledge and experiences to guide EUFOREA's awareness, education, and policy initiatives. This collaboration lets us know which initiatives are needed and ensures that our work reflects the real needs and priorities of the patient community.
Since its launch in 2017, the Patient Advisory Board has helped to:
The Advisory Board meets 4 to 6 times per year through online meetings, bringing together a diverse and global network of patients and carers. Each meeting focuses on key themes, from improving patient care to identifying educational gaps and shaping EUFOREA initiatives.
Between meetings, Advisory Board members receive regular e-mail updates from EUFOREA, such as meeting invitations, agendas, possible optional preparation, or follow-up requests.
Are you a patient or carer for someone with asthma, COPD (Chronic Obstructive Pulmonary Disease), hay fever (allergic rhinitis), or nasal polyp syndrome (Chronic Respiratory Syndrome with Nasal Polyps, CRSwNP), and do you want to make a difference? Then we’d love to hear from you!
Registering your interest does not mean you are obligated to participate. It does mean that we will provide you with more information on the EUFOREA Patient Advisory Board so you can decide whether to attend the meetings.
Those who wish to be more or possibly less involved can volunteer to participate in other activities such as surveys, focus groups, or collaborative projects. Participation in these initiatives is entirely voluntary, allowing members to contribute in the way that best suits their availability, capability, and interests.
